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This ToolKit has been prepared to assist all those planning to attend the WPC 2019 in Kyoto, Japan; however it is specifically designed for those participants who are living with Parkinson’s disease (PWP). For some of you, this may be the first time that you attend a World Parkinson Congress. It may be the first time you have ever attended a scientific meeting of this size or the first time you have participated alongside researchers, neurologists, scientists and rehabilitation specialists. Whatever your background or experience, our wish is that WPC 2019 will be a positive, empowering and enduring experience for you.

This ToolKit will help you prepare, plan and participate so that your Congress experience will be meaningful and memorable. It will help you understand why you need to be there, how you can effectively prepare yourself to make the most of your days at Congress and how you can participate so that you will feel welcome and connected throughout your time in Kyoto.

This is a resource for you. As you look through these pages, find those parts that are of value to you and your community and use them in your planning. And please send your comments and suggestions to us so that we can make improvements for future World Parkinson Congresses.  


Why You Should Attend

Website Orientation

Getting Ready

 Planning Your Day

Other Resources

 

 


Why You Should Attend

WPC offers many opportunities for participation and growth. Here is what some past attendees have said about their experiences and why they think you should attend. 




Website Orientation


Browse the WPC website and familiarize yourself with the layout and the contents. Become the expert! Do you know about the Travel Grants program? And when early bird registration closes? What about housing details? Read on for everything you have ever wanted to know about the WPC 2019. 

 WPC eNews

Click here to subscribe to the monthly WPC newsletter & read past issues.  

  

 WPC 2019 Buddies Program

Would you like to attend Congress with a friend but don’t know of anyone else who is going? Sign up for the WPC 2019 Buddies Program and connect with another registrant from anywhere in the world for dialogue and companionship before Congress even begins.

 

 WPC 2019 Video Competition

The World Parkinson Coalition understands the power of video messages. We launched the first video competition for the WPC 2010 and were surprised by its outstanding success. We once again opened the video competition for the WPC 2013 and received almost double the number of submissions from all over the world. 

You can watch the WPC 2016 video submissions on YouTube here

 

 Abstracts for Poster Presentation


Perhaps you have a project or program you’d like to tell us about. Whether you are a health care professional or a person living with Parkinson’s, or both, send in a poster abstract between July 9, 2018 and November 23, 2018, outlining your project or program. Click here to learn more about abstract submission. 
  


 Send Us Your Photo

Send us your photo with a sign telling us you’ll be there. Seeing your photo scroll through on the WPC website home page will surely connect you to WPC. Let the world know you’ll be in Kyoto in 2019! Submit your photo here. 

 


 


Getting Ready

 

 Medical Responsibility

It is the responsibility of each delegate to do everything possible to ensure his/her own safety and well-being for the duration of Congress. Thorough planning is mandatory.

  • It is imperative that every delegate has medical insurance and appropriate accessible personal medical information.
    • Contact your insurance provider to ensure you have adequate medical coverage while in Kyoto.
    • Contact your doctor to see if he/she can recommend a doctor or medical facility for you in Kyoto.
    • Each delegate must carry, at all times, personal identification and information about whom to contact in case of an emergency. *This information can be written on a card that is tucked into the individual’s registration badge.
    • A Medical Emergency Card will be provided for all delegates in each registration package. We recommend that you fill this out and carry with you at all times.
    *NOTE: In the case of a health or medical emergency during Congress, your first stop is the Emergency First Aid room at the Congress.

Please refer to the Medical Responsibility handout for more details on your health care responsibilities.  


 Medications

  • It is important to seek specific medical advice from your neurologist. He would be able to give you a letter detailing your diagnosis, your medications (including generic names - see and dosages), and contact information for your neurologist/physician and pharmacist.

  • Because travel often means entering another time zone, your medication schedule might need some adjustment. In consultation with your neurologist, work out a schedule that follows your usual timing as closely as possible e.g. you may wish to follow your regular schedule and add an additional dose at breakfast (often just before landing).

  • We all know things get lost when traveling so some extra organization is required. Bring extra meds (we suggest 3x as much as you need – carry one set in your carry-on/handbag, another set in your packed bags and a third set with your traveling companion.) A readily accessible pill organizer (holding your daily requirements plus an additional dose) would be helpful on your travel day. All meds should be readily identifiable because every country has its own regulations about bringing in prescription medication. Carry meds in original containers. Be sure to keep meds away from sources of heat.

  • Carry water with you at all times – a small bottle in your purse or knapsack will be handy.

 

 Packing

  • Pack early and do a trial run. Know what the suitcase allowances are for your carrier and ALWAYS check the weight and size of your case before you leave home.

  • Pack light – clothes should be wrinkle-free, lightweight, mix-and-match, and comfortable. You will want some clothes that you can layer as the temperatures may change throughout the day. Take a jacket, gloves and scarf, and perhaps a pashmina.

  • An electrical adaptor, a water bottle, small flashlight and a nightlight are useful.

  • Carry gum and facial wipes – you will be ready to meet anyone after a very long flight or a very long day.

 

 Accommodations

  • You are encouraged to determine the services available and the accessibility features at the accommodation you have chosen; "accessible" does not always mean the same thing.

  • If the hotel has an airport shuttle service, you may wish to make a booking before you leave home.

  • A room on the ground floor or near the elevator might alleviate long waits or long walks. 

 

 Traveling

Just as Parkinson’s disease affects each person differently, the comfort level you feel for traveling will vary depending on your symptoms and your previous travel experiences. You may feel intimidated by the thought of traveling because of the challenges you face with movement, speech or mental acuity. Yet the journey to a place and the return trip home are integral to the overall experience. Even the simplest or shortest journey needs careful planning. By following some basic steps and being well-prepared and well-informed, traveling can be enjoyable and rewarding. If at all possible, allow for a rest day after you arrive at your destination so you can recover from the journey and be ready to participate when Congress opens. For a great traveling experience to Portland, check out the suggestions and tips we have put together in the following handouts:

  • Be a Smart Traveler: This handout provides tips on traveling by plane, train, car or bus. 

  • Travel Fit Tips: This handout provides ways to keep your muscles and joints from stiffening up and becoming sore while you are en route.

  • Travel Checklist: Going through the Travel Checklist will ensure you have all the required paperwork with you.

  • Traveling with CPAP: Guidelines for taking your Continuous Positive Airway Pressure machine with you.

  • Traveling with DBS: Demystifying travel if you have either of these devices.

If you use Duopa/Duodopa, there may be some extra details to attend to, but you will still be able to travel. Your pharmaceutical rep can provide you with a Travel Checklist for Duodopa to ensure you have thought of all travel concerns and are well-prepared. Any questions you have could be discussed with the drug provider or representative.

For specific information about traveling to Kyoto, visit Getting to Kyoto.  

 



Planning Your Day


Making good choices about how you will spend each day will help you get the most out of Congress. Remember, it is important to pace yourself. With about 7 time slots and more than 50 speakers each day, it may seem like an overwhelming task to sort through the program.

 Structure & Terminology

  • Hot Topics Each morning four topics from the poster abstracts will be presented to the broader audience. These are generally given by researchers and clinicians who are relatively new to the field of Parkinson’s and stand to be our future leaders.

  • Award Ceremony Awards will be presented to outstanding contributors in the field of Parkinson’s research and management.

  • Plenary Sessions Delegates come together every morning to hear presentations from 4 experts on specific topics that highlight the theme for the day. There is limited time for questions and answers but the speakers will be available all week at different sessions to continue the discussions.

  • Parallel Sessions In-depth sessions focussing on specific, cutting edge research in the field of Parkinson’s that will increase understanding of the basic and clinical science underlying the many facets of Parkinson’s.

  • Workshops These are designed for smaller groups where an overview of a topic will be presented followed by illustrative case studies or research findings. These are more interactive than the parallel sessions and offer more time for questions and answers.

  • Roundtables Delegates have the opportunity to sit down with an expert in a small, more intimate group. After a short introductory talk, the time will be open for discussion. Registration for roundtables will take place each morning at the OCC, in the foyer of the plenary room. You will be able to register each day for the roundtable that will take place on that day only. Spaces are limited and will be processed on a first come first served basis.

  • Wrap-Ups An opportunity for all delegates to gather again to discuss the highlights of the day. Experts and leaders in the field of Parkinson’s will help to synthesize the information and ideas that were presented throughout the day.

  • Poster Tours Small group tours will highlight specific topics of work being done by young researchers and clinicians. Sign up is required for each tour.

  • Special Lunch Presentations are given over the lunch hour.

There are three classifications for the sessions (basic science, clinical science & comprehensive care) and three presentation levels (highly, moderately or minimally scientific) to help you identify the intended audiences. Each presentation will be identified with 2 symbols or icons to indicate session type and level. 

 

 

 Events and Activities

There is a lot happening each day at Congress. Besides the presentations, there are many other activities, displays, events and opportunities that you may be interested in and that are also an important part of your Congress experience. There are several new initiatives this year. All have been planned with you in mind. To help you select the activities you would enjoy participating in, we have created a checklist for you to use as you contemplate your daily schedule. You can download the Checklist of Events to assist you.  

 

 Personal Planning Schedule

There are several things to consider when you map out your schedule for each day - not only your own interests but also your energy and abilities. When you have decided which sessions and activities you will attend, you may want to use a Personal Daily Schedule. At a glance, you will be able to see what your day looks like. We are providing two options. If you like, download one of these daily schedule templates for your use. 

    


Other Resources

 

 Promoting the WPC

There are many things you can do to promote the WPC in your community. Brochures, postcards, posters, and other materials are available either online or from the WPC office. They are available in print or electronic form on the WPC website.

 

 Glossary

Revisit the WPC's comprehensive glossary to understand new terms. Click here to view the glossary. 

 

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